Wednesday, August 8, 2012

Doctors Day! August 11th is almost here(JD's 17th Birthday!) Oh, and don't forget it's SMA AWAENESS MONTH!!!

 We have had a busy few months to say the least....
my little girl turned 20 years old. I still can't believe I'm that old!!
And on this Saturday my little boy will turn 17 years old!!
Wow, I am old!  

 JD's doctor visits went very well yesterday! We do go back in 6 weeks, because I have been trying to change up his diet a bit. So working with the dietician took most of our time. The clinic we take JD to is so awesome--they have moved off the island since Hurricane Ike. The new clinic has limited access in the front, so JD never has to wait. We pull into the back, take the elevator up, ring the bell and they let JD right in to his own room. Usually, seeing all the docs and familiar faces down the back hallway. Sure does make my life a whole lot easier. His appointment was at 11am and we were home by 1 o'clock with a Starbucks coffee in tow. Not a bad first half of the day.

 We are gearing up for the Big Birthday weekend, after today only 3 days left! JD will have his usual entourage (of course) and we have heard from a few more that they will see us there. With our new photographer (Maggie) on hand, we should have plenty of pictures to share of JD's Big Day while he  "Dances in the Rain". Sure hope to see You out there! If you missed all the info on JD's birthday then I will share it again for you...
 For those of you that were expecting to come and have a great time on JD's birthday with him-you still can.We will be taking JD to the Moody Garden Pyramids on Galveston Island on August 11th for his birthday! Moody Gardens Galveston Island / www.moodygardens.org/ . He has never been there, even tho we live so close. So we think it's time to go! JD will get to see "Batman: The Dark Night Rises" on the largest 3D screen in Texas, in the Discovery Museum he will get to see "Bodies Revealed" http://www.bodiesrevealed.com/, and hopefully we can get him on the Colonel Paddle-wheel Boat to sail around Galveston Bay. He will also get to visit the Aquarium Pyramid and the Rainforest. Bands on the Sand planned for that night at 6pm and a Fireworks show afterwards. I will be bringing our candles to light and spreading awareness to whom ever we meet on JD's big day! I'm thinking, what a great way for JD to spend his 17th birthday! If you would like to see JD on his birthday and help him celebrate, then we will meet you out there! more info here at this link....
(Please share)...
jdsmajourney.blogspot.com/2012/07/jds-birthday-august-11th.html
We also want to remind you to please light a candle in honor of all our SMA warriors and angels on August 11th at 8pm for National SMA Awareness Month / International SMA Awareness Month Candle Lighting....
YOU are invited>>>
Please do this in honor of the warriors and angels of SMA... join families & friends by lighting a candle at sunset to remember those SMA Angels who have lost their battle with SMA and to honor those SMA Warriors who are fighting everyday. As this event continues to grow we hope to bring awareness about SMA and also unity to the families living with it as we join spreading the light of our candles around the world. We hope you will join us by lighting your candle for SMA families everywhere. Just light a candle from wherever you are at this time. Please feel free to post a picture of your family participating in this event right here at...https://www.facebook.com/events/408856465837949/ Public Event · By SMA Mom-Susan A. (so a video can be made by Brenda & MJ (B4SMA) and/or www.facebook.com/familiesofsma

Today is day 8 of SMA Awareness Month so PLEASE Get Involved One Way or Another!:  below you will find a group of "AMAZING" Kids with links to their websites! Click on their links! Share them! Spread the word!
They Stand Together to Move Forward!
...and if you could find it in your heart to help any of them "Dance in the Rain" every once in awhile, I would be forever grateful!

August National SMA Awareness Month:
for the month of August watch JD's website and learn where you can help out the most!   www.team-jd.com

SMA Awareness & Groundbreaking Research:
 
B4SMA ~ Blankets for Spinal Muscular Atrophy Kids-
Miracle for Madison & Friends ~ Fight Cure SMA-
SMA it Forward with Cashelhttp://www.smaitforward.com/
Marshall's Miles-   http://marshallsmiles.com/
Sophia's Cure Foundation-  http://www.sophiascure.org/
Avery's Bucket List-  http://averycan.blogspot.com/
Getty Owl Foundation-  http://gettyowl.org/
Team Ben Charity-  http://www.team-ben.org/
Emerson's Hope Foundation-  http://home.emersonshope.org/
Families of SMA-  www.curesma.org
SMA Space-  www.smaspace.com 
Team JD Kids Foundation-   www.team-jd.com
We Need YOU right now: www.team-jd.com/events.html

I can't thank you enough for celebrating JD's birthday with us again this year!
Rhonda




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Thank you for your input! We appreciate your awareness in our personal blog! We would like to ask you to please get involved anyway you can! CURE SMA!
Thanks again,
Team JD